Anonymous asked: I am so sorry for your loss. I know that the word sorry doesn't suffice. I haven't seen anywhere if you mentioned what CHD Cora had. I was very close to losing my son because of not having a pulse ox check. He crashed 24 hours after he was born and then told me it wasn't a heart defect. He has HLHS! Thank God, he is with me and 13 now. But i have read Cora's story and have been very touched by it and was just wondering what she actually had. God Bless you and your husband. Love, Lisa June
Hi Lisa,
HLHS is a difficult road, so glad to hear he is 13 and thriving. The autopsy actually doesn’t name what she had. It names a congenital heart defect. It’s not straight forward. She was so little. We think we know, but aren’t sure.
Anonymous asked: I am so sorry for your loss. I know that the word sorry doesn't suffice. I haven't seen anywhere if you mentioned what CHD Cora had. I was very close to losing my son because of not having a pulse ox check. He crashed 24 hours after he was born and then told me it wasn't a heart defect. He has HLHS! Thank God, he is with me and 13 now. But i have read Cora's story and have been very touched by it and was just wondering what she actually had. God Bless you and your husband. Love, Lisa June
Hi Lisa,
HLHS is a difficult road, so glad to hear he is 13 and thriving. The autopsy actually doesn’t name what she had. It names a congenital heart defect. It’s not straight forward. She was so little. We think we know, but aren’t sure.
Posted 1 year ago Notes
